Wow! I thought I'd have more time in the summer to update this blog and turns out, I don't! Life is just busy. Things have definitely changed since the last time I blogged.
JUDY- Well, she's really been amazing!!! We LOVE her!!! Not sure exactly what happened but she's a gem! She still has some sensory issues, and doesn't sleep that well BUT she's not as crabby anymore!!!! She's been getting Speech and Occupational therapy from First Steps. We believe this has helped her a lot! It's been so wonderful for our family to have JOYFUL JUDY around daily!!! :)
JACKSON- Jackson starts growth hormone injections next week. Luckily, we were able to get him in on a clinical trial for a new drug, that will be free to us for 9 months. After that, we will have to start paying. After much investigation, the drug will be around $1000/month. CRAZY! He will need to take this injection daily until he's finished with puberty. :( He Jackson doesn't take this, he will likely end up being around 5' 2". With the drug, he should be 5'7" or taller. Bless his little heart. He keeps saying, "I sure this fixes my small problems.".
MY DAD- Dad has still been really ill. He has no energy and terrible headaches daily. However, 2 weeks ago he went to his cancer doctor. They ran blood work AND he is CANCER FREE! Amazing! Now he still has the blood disease, but the cancer is gone! Everyone was shocked! Including his doctor! His doc says this rarely happens, especially this quickly! So grateful for my dad, yet, he still needs a lot of prayer. It's very difficult for him to work.
The rest of us are great! I've had some extremely challenging issues with my work, but starting at a new school next month, as a 5th grade teacher. I'm really excited for this new chapter and ready to move forward. Also, Michael and I celebrated our 12th wedding anniversary last month! CRAZY! Time really flies. Gracie will be a 6th grader! How crazy is that?!?
Anyways, thanks for all your thoughts and prayers over this past year. I probably won't be posting as often due to my new job and Judy being so much better! This blog was such a wonderful way for me to vent, get support, etc. So thank you for reading. I will try to keep you updated on Jackson's journey.
