Wednesday, April 24, 2013

The weather explains it all!

Our days have been just like the weather these days, cold one day and hot the next.  It's so frustrating to not know what tomorrow will be like.  I guess I should be thankful we get some good days!

Today was a good day, and I really needed that.  Joyful Judy was so much fun to be around this evening.  Every time she gives us kisses, she opens her mouth really wide. This evening, she was trying to make a smack with her kiss.  It was so sweet!  I loved every minute of it!  When I lay my head down tonight to go to bed though, I can't help but wonder who she will be tomorrow, Crabby Judy or Joyful Judy.  Just thinking about it can make me so anxious!  I wish I just didn't have to worry about it,  I wish she was happy all the time (or at least the majority of the time).  Judy sets the tone in our house. I know that sounds crazy but she does! And there's nothing I can do about it.  I just want to fix it. 

Still waiting on the neurologist from Riley to call, so that we can make an appointment.  First Steps therapy starts this month too.  The Riley doctor wanted to get an EEG (I think that's what it's called) on Judy- this would see if she's having any type of seizures, brain issues, etc.  I asked what all it entailed- and I was like, NO WAY! It just wouldn't be worth it, unless the neurologist really thought we should do it.  So, I will wait to see what the neuro says.  It really doesn't sound that bad, but knowing Judy, it would be a nightmare.  We would have to go there in the morning, they would put all these cords on her head with a bunch of sticky glue, and then try to get her to take a nap (for at least an hour).  OK, Judy doesn't really take naps, and when she does, it would have to be in her element and in her own routine. Also, the sticky glue they put on is so sticky that it doesn't come out for 2 weeks after the test.  Judy would lose it if someone touches her head, let alone put wires and glue on her head.  She would be a HOT MESS!  I know she would never fall asleep, especially with all that stuff on her head.  I have no idea how they get little babies to do this test.  Judy would freak and I think that would just send me over the edge. AHHHH!

We've found that Judy loves the warm weather! So, this evening, I'm praying for warm weather.  I'm tired of the rain and cold!! My family, my life has had enough rainy days.  We need the sun.  "When it rains, it pours"...that's exactly how the past few months have been for our family.  Praying for a sunny day tomorrow!  I think we've had all we can take.  And my sweet Jack! He has his growth hormone deficiency test May 1st.  Please pray this is painless and that our sweet Jackson doesn't think too much about it. 

Thanks again for all your support and prayers! 

1 comment:

  1. Court - My life verse is Matthew 6:34, "Take no thought for tomorrow, for tomorrow will take thought for itself. Sufficient unto today is the evil thereof."
    My prayer is that each and every day you will not focus on the evil, that you will rest your head each night not thinking about tomorrow.
    You are doing all you can to help dear, sweet Judy. Leave the rest to the One who knows what it is, why she is that way and how it could be fixed.
    Worry doesn't change anything - it just makes you sick in some way or another!
    The tapestry of our lives that God is working on is beautiful from his vantage point in heaven, but what we see is knots and carry-overs. Give Him time to finish what he has begun!
    Praying for you, Michael, Gracie, Jackson and Judy, and your Dad & Mom.
    Love much - Beth

    ReplyDelete