Fish Out of Water

No way! We did a little "staycation" last night at a hotel with an indoor pool! It was a lot of fun.  However, from the second we walked into the pool area, Judy was shaking, screaming, and crying!  It didn't help that Jackson jumped right in.  I think the sound of the splash set her off.  Judy held onto me so tight, for at least 30 minutes.  I have marks on my arm to prove it! She was terrified of the water! I was so bummed because she loves the bath, so I figured she would love the pool.  No way!  Hated it! Bless her heart! Between the sound, smell, and touch of the pool- she wasn't having it! I tried to put her feet in after awhile, she let me do that.  But she freaked if someone came close, made too loud of noise, or anything!  She's so precious! Little Judy's hair got extremely curly from the humidity in the pool area, her cheeks were extra rosey from the heat, and that somber face!!! Oh my goodness! She looked like an angel!!!  My precious little sensory baby!!!

Labels, labels, labels...

So...Mike thinks Judy's fine. He thinks we just have a crabby baby because that's our luck.  He hates the labeling! I told him the other night how I thought OT would be good for her.  He made fun of me because I was using "acronyms" now!  He said he wasn't educated yet on all the acronyms for all the labels we are going to put on our child.  UGH! I know he really thinks that she's just crabby, but I told him, this is not normal.  He said it's our normal.  UHH! Annoying!! I told Michael that he was going to make the blog because I was so mad at him!! We weren't really fighting! We were actually laughing about it and all evening he was making up acronyms for everything.  I am kind of bummed though, because I do believe she has SPD.  I guess it doesn't matter if he agrees or not, we both will still do everything we can to help her feel better.  I guess he just hates the labels.  This is every reason why he never wanted a 3rd child- he knew the baby would be crabby and hard.  And...he was right!  It's such a bummer. Gracie was extremely colicky for 4 months- I mean never stopped crying.  Forever this has changed Michael on his view of having children.  And go figure, we have our 3rd and she's beyond colic! UGH!!!  I could just scream.  She is however doing better still.  The behavioral psych said something interesting.  She wonders if the Valium we gave Judy for that short period of time DID give Judy some relief.  Because the day after I stopped giving it to her, she's been a different kid ever since.  It's interesting and something to consider.  That Valium might have actually helped?! Who knows?!  Just pray this good streak continues and that Michael can accept the labels we find Judy has. Thanks friends! Love you all!!

Great 9 minute clip on Sensory Processing Disorder...

I know this is what Judy has...http://www.youtube.com/watch?v=D1G5ssZlVUw

Could be...

Well, according to the Behavioral Psychologist, Judy could have a bunch of different things!!! Who knows?! Always, the guessing game. Of course, nothing can be black and white.  Still grateful Judy is being joyful!! Met with the psychologist today.  This was the only behavioral psychologist that would see Judy, since she's so young. Most psych's don't see babies.  Anyway, she was very nice. She observed Judy for an hour.  She saw many of the same things we have always seen.  Doc agreed that Judy definitely has Sensory Processing Disorder.  She gave me several things I could be doing with Judy to help her when she gets frustrated (i.e. a weighted blanket).  Doc also didn't rule out autism.  She said that autism has a very WIDE spectrum- and that Judy could fall on that spectrum somewhere.  I'm not so sure about that. Doctor also said Judy could have ADHD.   I really feel like we can't truly diagnose her with something like that until she can speak to us.  Who knows?! Why can't I just get a clear answer?  It's exhausting to always be wondering and explaining her to every single doctor!

All I know is...I'm extremely grateful for Judy! She's just a little lovey!  I can handle the sensory stuff. However, she did bite me pretty hard today and it hurt!! But, she bit me out of love. That's the thing I'm worried about.  Judy expresses herself in very intense, weird ways- like, she bit me today, and I know, she was really trying to tell me she loves me.  I know this because I could tell by her eyes and her body language. I guarantee the teacher and classmate years from now, won't believe that's what Judy is biting for.  Who knows? I just need to take it one day at a time for now. I'm on spring break for 2 weeks and I'm excited to spend this time with my Joyful Judy, Precious Gracie, and Hilarious Jackson!  Today is my Jackson's 9th birthday!! So now, I have a 11 year old, 9 year old, AND 1 YEAR OLD! AHHH! I'm crazy!!!

Finicky Judy

 

 

Well, I guess we could call her Finicky Judy! So grateful to take the Crabby part away!!! But Judy does have some really odd symptoms.  Maybe sensory stuff or OCD?!? Tonight has plenty of great examples..
Judy loves taking a bath (always has)! After her bath, I tried to lay her down to put her diaper on- but NO WAY! Like I've said before, she hates being on her back- she screams! So, I really didn't want to fight her tonight, so I didn't! I let her run around naked for 1/2 hour! She loved it! I decided to put her diaper on while she was standing.  While running around, she plays really hard. She likes to play hard.  She loves to do risky things, things that can hurt her.  Like, she loves to get on top of the ottoman in our family room. Not just sit on it, she wants to stand and then fall off! She thinks it's hilarious, but we know it has to hurt her! It's really odd! Then she gets back up and goes back and forth on it, and topples over again- straight on the hard floor- head first! It has to hurt, but she brushes it off and gets back on.  Nothing she does is soft and gentle. She also wanted me to put her new shoes on. I did and she was thrilled, jumping up and down, touching them, and screamed when one fell off.  I know some of this sounds normal, and it probably is.  But it's really weird when you put it all together.  She's just so intense.  Michael was sitting on the floor with his back up to the couch- she wanted squeeze between him and the couch- she got mad when he wasn't pushing really hard against her.  She laughed and giggled when he pushed his back hard.  Finicky Judy also loves to be held by her ankles, upside down.  Whenever she's screaming, I sometimes hang her upside down and she stops crying.  The second I laid her down on her back to put her pj's on, she started crying tonight! It's just so odd. It's hard to explain her and put her into words.  I just know somethings going on. Super happy that she's not as crabby, but I really want to get to the bottom of this.  I'm just tired of not knowing.

Oh Judy, Oh Judy...

Oh Judy, you just keep us guessing! Judy has really been a different child since last week! We still have NO idea what happened to her!! It's amazing! God is good! I believe he heard OUR prayers! Thanks again for praying! The Spear household has had a completely different tone to it the last week! It's been so refreshing!

The past two evenings though, she still has us wondering if something is hurting her. She becomes extremely irritable quickly.  It's hard to describe and explain.  I've noticed more and more it's when she's laying on her back. It seems like something's hurting her neck or head. Who knows?! The last week though has been so wonderful, that I've been trying not to think about it.  It can make me crazy when I start guessing and wondering what she has!  Maybe it's a couple of little different things?!?! Who knows?  When I start googling- it's downhill from there!  Ha! There's so much stuff it could be! I'm very interetsed in what the behavioral psych has to say about her! She's a baby! But maybe they will have something.

Good news- since this last week, she's started babbling a little bit.  She also has added uh-oh to her vocab.  She still bites and clenches her jaw when anxious- it's weird and kind of alarming.  But again, I'm trying to not go there.  Just taking it one day at a time. :)  Wine will be my choice of medicine for myself this week! HA

UPDATE...

Today, once again, she is... JOYFUL JUDY!!!! Can't believe it!! UNbelievable!!! Keep praying if you have been, because seriously that's the only thing that has changed- more prayers!! I appreciate all your care, prayers, comments, etc!!  We even received a meal from a dear friend of mine and brownies from a neighbor!!! :) You all are too good to us! So nice and comforting to know how many care!  My awesome sister, Ali, is even taking all 3 of my kids today to the museum (along with her 3 kids)! I know, she's crazy!! But so sweet of her!!  I'm still pinching myself to make sure this new Joyful Judy isn't a dream!!!  Guess it's the luck of the Irish! :) 
We have never seen Judy laugh so hard, and be content as long as she has been.  It's wonderful! She still has sensory issues.  She gets really frustrated with things and nervous with things- during those times she clenches her jaw and strains her face for a few seconds.  It's really weird. We are still meeting with the behavioral psychologist next week and starting first steps in a couple weeks.  We will also be seeing the neurologist at Riley (waiting on them to call). 
Once again, I can't thank you all enough for the support and prayers! I will be keeping you updated...more for more good days!!!

                                         GO JOYFUL JUDY GOODBYE CRABBY JUDY!!!

Crabby Judy becomes Joyful Judy?!??! WHAT!????

Amazing! I hope I'm not jinxing myself but Judy has had 2 really great days and nights!!!!!! We are not sure what happened?! Not sure if it will last, but so thrilled at the same time! Judy's been a joy to be around! It's kind of weird! Really, I think it's the power of prayer.  I've never experienced her this happy.  Since I've started this blog (not even a week ago) tons of people have emailed/messaged/face booked me saying that they were praying for Crabby Judy!! I swear that's the only thing that has changed!!  Keep praying- if you are because it's working!!!

Judy was the sweetest lil girl tonight!! My mom came over and got to enjoy her as well!! We have been in shock! Judy was playing, laughing, running around, hamming it up, giving everyone kisses, and didn't CRY once!!!! I'm in shock! Just can't believe it! Is this a dream?! Please let it be real!!!

Sweet Moment!!!!

 So, the past couple days haven't been so bad!  Daycare said Judy wasn't crying so much AND actually wanted to participate in some activities.  Typically, she's very hesitant to get involved in any sensory activities at school.  Judy also slept the past 2 nights!! WOOHOO! Praying this is a new trend!!

Anyways, the "sweet moment"...Tonight I rocked her before bed, she lifted her head, smiled, said "Ma", kissed me, and then laid her head back down!!! I melted!!!! My sweet Judy. Oh how I love you.  Every reason why I'm so eager and determined to find out what hurts you!  I pray you are miraculously healed- but if you wake up crabby tomorrow, I promise to continue my search for answers for you!! I love you, Jud!

Still ????

 

Seriously!!! Seriously guys!!!! I LOVE this little girl soooo much!!! What's wrong with her?!? I'm baffled!  So confused.  How far do I push this? I just KNOW somethings wrong.  Spoke with Riley doctor today.  Since Valium wasn't touching her, she told me I could stop giving it to her.  I hated seeing her on that strong of drug.  It was so weird! Plus, it wasn't helping. Can you believe that? Golly!!!! I want her to be happy and to love life! I want her to explore and learn!!! Doctor now sent me to a behavioral psych.  Waiting to get an appointment with her.  Meanwhile, I have the appointment set up with First Steps for speech.  Should I be doing anything else?!?! I'm her only advocate! AND I KNOW SOMETHINGS WRONG!  Back to giving her benadryl (prescription type) and Motrin.  She's been in bed for an hour! WHEW!  Just waiting on pins and needles to hear her start crying. She'll probably start the second I lay my head down. 

New info- I forgot to add earlier...Judy has been having a lot of fevers recently.  Two weeks ago, she had a fever of 103 for 5 days, no other symptoms except fussiness.  Her pediatrician had no answers for me.  Since then, she has a low grade fever at least once/day.  Usually I associate it with teething. But who the hell knows?! It's always a guessing game.  Sometimes, it's around 101.  Riley doc told me to keep a journal of her temps.  I decided today, I'm going to try to journal everything, so I can show the doc next time.  Day care said they will keep a Judy journal too!  She's also been extremely constipated, which I think is coming from all the meds.  Oh Judy! My little lovey!! Please tell me what's hurting you!!!

PS- Thanks for all the posts, comments, and messages!!! I've been reading them all!! It's nice to know I'm not alone.  It's also nice to know how much sooo many people care!!

There she goes...SCREAMING!!! Goodnight...

INFO on Riley Children's Hospital...Diagnostic Clinic

I have received several emails about info on Judy's doctor.  If you are searching for answers for your child as well and live in the Indianapolis area, I highly recommend this hospital and doctor....

Diagnostic Clinic at Riley Hospital for Children at IU H in MSA1 is opened again and awaiting patients

The Diagnostic Clinic at Riley Hospital for Children at Indiana University Health assists physicians who wish to refer infants, children and teens for second opinions or consultations. We help physicians in managing complex problems or difficult-to-diagnose illnesses. Dr Dorota Szczepaniak Associate Director of Clinical Affairs for the Riley Hospital for Children General & Community Pediatrics at IU Health will be in charge of evaluating patient’s referred by you. To make an appointment call 317-944-2801. Riley General & Community Pediatric at IU Health is situated in MSA1 Clinic.

Patients will be scheduled to fit the needs of the family and referring physician. Our goal is to see the families within 3 days of the referral. To assure that we are effective and helpful, we ask that you fax copies of appropriate medical records, 317-944-5630. Please complete intake referral form to expedite scheduling and fax with other medical records.
The referring physician will be called within 24 hours of the visit and will receive a written report within a week of the visit. If further consultation by faculty members in other medical sub specialties is necessary, this will be arranged after discussion with the family and the referring physician.

Day 4 of Valium...

This weekend has been exhausting, to say the least.  This evening, I'm a wreck.  I feel like I've been hit by a truck.  My emotions are everywhere.  A few hours ago, I went from laughing to crying in seconds! My poor baby is so drugged! It's scary.  Judy seems like she's in another world, not all there.  Her eyes are really the worst.  Maybe the Valium helped a little today, maybe?!? Still, I would think it would help a lot more.  But is it even worth it?!? Poor Judy isn't all there when she's on it.  What am I doing to my baby? I feel crazy.  CRAZY!  I will be discussing this w/ the Riley doctor tomorrow.   :(

She does smile sometimes! :)

PS- Thanks for all your support! Really this has just been a great place for me to vent, and unload.  Thanks for being on this journey with me! It's nice to know how loved and cared for we are!!

The Whole Story....of Crabby Judy and why I'm going crazy!

Crying, crying, crying, crying! She doesn't STOP CRYING! She's fed, changed, and all she does is CRY! She doesn't stop crying. When she's not crying, she's irritable, fussy, or just erratic.

The Low Down...

Where to begin??? I'm a mom of three kids. For 10 years, just a mom of 2 kids. Grace Elizabeth is now 11 years old, and Jackson David will be nine years old this month.  My wonderful, handsome, loving, husband of 12 years, Michael, and I were completely done having children.  The Lord decided we weren't done.  In 2011, I found out I was pregnant with Judith Louise Spear. This was a hug shock to our family (understatement)! Deep down, I had always wanted one more, just would have rather the 3rd child be a lot closer to the first two children.

It was like starting all over again.  My sweet sister, Ali, even threw me a baby shower, because we had gotten rid of everything. My kids were excited! Everyone we spoke with told us that "surprise" babies are the best, that "surprise" babies end up being the parents favorites, and that they always are very easy going.

I know you are saying, "Okay, so what's so unique and crazy about your story?". Well, it all started when I was 7 months pregnant and I got mugged in the alley behind my garage. The mugger simply wanted my groceries, and instead of just asking me for them, he pushed me down and I fell over on the huge garbage bins. I was sent to the hospital because the trauma caused me to start having contractions. Doctors were able to slow them down, and I left the hospital with just a few bruises. One week later, I started having sharp pain in my sides. Found out, I had kidney stones.  These stones caused severe pain. The pain was so intense that they kept throwing me into labor. The doctors gave me Percocet, a drug to ease the pain. I lived the last three months of pregnancy high as a kite on these drugs. Doctors swore to me that it couldn't hurt the baby.  It was horrendous! Not just for me, but my whole family! My kids didn't understand why I couldn't really talk to them, do stuff with them, or get out of my bed.  Needless to say, it was miserable! WE all just wanted her to come out!!!!

Finally, after long hours of labor, Judy made her appearance, December 30, 2011.  There was a HUGE sense of relief and Michael and I felt like, finally we can start living normally again!

RSV to Kick it Off...

Boy, oh boy! We were certainly wrong! When Judy was two weeks old, it all started. CRYING! Judy was extremely irritable. When she was less than 2 months old, she developed RSV. She was admitted into Riley Children's Hospital. Judy stopped breathing several times because of her terrible cough, her lips even turned blue.  It was so scary.

After RSV, things just went downhill from there.  The RSV screwed up the breastfeeding, so I ended up supplementing, then just solely to formula.  Of course, the regular formula didn't settle well with her (I should've figured). So, they put her on the most expensive formula on the shelves. Even with this formula, she still CRIED ALL THE TIME.

Diagnosis...Extreme Colic...Really?!??

Judy fed every 2 hours even through the night.  We had her at the doctors weekly thinking something HAS to be wrong w/ her. Docs put her on reflux medicine, that she continued to take for months, but she still cried.  She had some ear infections, so they put tubes in her ears, but she still cried.  The doctors ran all kinds of tests, ultrasounds, CT scans, xrays, blood work, etc and NOTHING! All negative and still crying! Judy's pediatrician group were stumped and they all felt horrible that they couldn't give me answers.  They labeled her Extreme Colic.

My oldest, Grace had colic. However, the second she turned 4 months old, she was cured. Since then, she has been the sweetest, kindest young lady around.  Judy was now 6 months old and still crying. Docs said it may take till she's 9 months to grow out of this.  We tried to remain hopeful.The crying, fussiness, irritability just kept getting worse and worse. Mike and I were totally losing our minds! Now, developmentally, she's been fine. Actually, she's quite advanced in many areas. She rolled over early, crawled early, etc. But at this point, 6 months, she still was feeding every 2-3 hours, even through the nights.

The weird thing was, she cried all the time, but whenever we took her to a new place/different environment, or was around new faces, she seemed to act fine, for the first couple hours- then she'd get back to her crabby Judy self. Michael and I would complain and vent about her, but no one understood because whenever she was around those faces in new places she would act fine!  UGH! It was so frustrating.  we felt crazy, like maybe it was us or maybe we were over-reacting!?!?! We didn't know!!! We still don't!!! She won't sit still. She's always moving. Judy just can't relax. She won't play by herself, she won't just sit in your lap, always fussing and at our feet crying.  She also gets very nervous and anxious when there's a lot of commotion or in big spaces. She just can't handle a lot of things. As a teacher this started to make me wonder about autism.  However, she talks with her eyes and is very involved with what's going on around her. This then rules autism out for me.

Postpartum Depression...I was going crazy!!!

In July of 2012, I found that I had postpartum extremely bad.  I was having horrible thoughts! Thoughts of hurting my own children.... AND for those of you that know me, know that I would never do anything like that! But I'm being honest here! I was having those thoughts! I couldn't get them out of my mind. The more I tried not to have terrible, violent thoughts of hurting my children, the more I would have them! It was getting so bad, I got so scared.  I didn't want to go anywhere, do anything, didn't want to take a shower, really didn't want to live.  I hated everything.  I simply couldn't pull myself out of this hole. Luckily, my husband intervened and forced me to talk with someone.  I was able to get counseling and was put on a miracle drug that cured me from thinking those things!!

Needless to say, our family was falling apart and Judy was not getting any better! I had to get some time away from her. I decided to go back to work, back to teaching.  I was so lucky because I found a teaching position at an amazing Indianapolis school! I just had to get away from her. Even though I had planned to spend this year bonding with my new baby!! Plans changed! They had to! So, we enrolled her in daycare and couldn't wait for the first day to put her in. 

Falling Apart, FAST...

We continued taking her to the doctor and they continued to tell us that they don't know what she has and hope she will grow out of it! At this point, we are feeling horrible for Grace and Jackson.  Jackson has been sleeping in the basement for a year because he can't handle her crying! Poor Grace, she never wants to have children of her own.  They both feel so neglected and left out! Both wondering what the hell has happened to our nice, sweet, little family of four.  I can vividly remember coming home from my parent's house and all 5 of us were in the car. Oh I forgot to tell you...Miss Judy hates the car, she screams from the moment we put her in until the moment we get her out. So, we were all in the car on our way home, which takes 35minutes.  Judy was screaming at the top of her lungs, Michael and I just looked at each other, took  big breaths and kept driving.  Within 10 minutes, with Judy still crying, all of the sudden we hear Jackson starting to cry, and before you know it, all 3 kids were crying in the backseat ALL THE WAY HOME! It was a nightmare! Michael and I just started tearing up as well. It was the longest drive home. We just kept thinking, what has happened to our family!?!? And all we could do was resent Judy...she has rocked our world! We wanted to love her and really "like" her, but it was too hard to.

School started, I was teaching, Judy was at daycare, and Michael was back to work, things were going ok.  But oh how we dreaded the weekday evenings and weekends. We did dread them b/c Michael and I knew it was going to involve JUDY! I just being honest here. Don't get me wrong, I love her, she's my daughter, but I couldn't stand being around her! Michael and I started fighting more. Both having very little patience and short tempers.  Both having no energy for our oldest two kids! It was terrible! Finally, at Judy's 9 month appointment her pediatrician told me I could let Judy cry through the night, and for me not to feed her through the night.  For a whole week, Judy screamed for 5 hours straight through the night. Finally, she figured out that no one was coming to get her and she would stop. That week was hell on earth! So, finally she started sleeping through the night- not totally, she's still cries a few times per hour, but we put her down and don't get her out until morning.  Judy then started walking early, like around 10 months! She also can get up and down the stairs at this time, which is very early! She's just one determined, feisty, active little girl.  We were hopeful that since Judy became very mobile, this would help her. NOT!!

 

Riley Children's Hospital

Really things just continued getting worse. Constant crying. Some days I think I hear her crying and she's not even around me. Craziness! The pediatrician sent us to Riley Children's Hospital.  She sent us to the diagnostic clinic.  This is the place where doctors send patients that they don't have answers for, patients with mysteries.  Our Riley doctor is like the doctor on the TV Show House.  Dr House!  A team of five doctors sat down with Michael, Judy and myself. We weren't sure what to expect. They spend a hour and a half with us, just talking to us, getting the whole story/history, checking out Judy, etc. It was unbelievable! This happened in February 2013.  Michael and I felt a huge relief for some reason after we shared our feelings about Judy.  It was nice to get it all off our chest and for people to listen to us and not think we were crazy! And that's exactly what they did, they LISTENED! They were amazing! Couldn't really give us answers but promised us that they would keep trying until they figure it out.  They ran lab work, physically evaluated her, and found that she was very low on communication. So, they recommended speech therapy.  They completely ruled out autism. Thank God! Her blood work came back and her levels were high for inflammation.  This made the docs wonder if she could possibly have rheumetory arthritis.  Finally, we felt like maybe we were going to get an answer! Well, they had to have several months data of her blood to determine this diagnosis. So, that means, we were going to have to wait and get her blood drawn every few weeks, so that they could see the numbers. Which meant that we were going to have to live with CRABBY JUDY that much longer!!! AHHHH! We wanted to cry!! How could we be at one of the best children's hospitals in the world and not get answers. ??????

Meanwhile, I forgot to tell you that her daycare providers are amazing! They are gentle, loving, caring, and do really love Judy. However, they even know somethings just not right w/ Judy! I get calls and accident reports weekly on Judy. She falls a lot, and will have these tantrums where she throws her head around and scream, and ends up with bruises all over. These tantrums are like a 2 year old's temper tantrums.  It's crazy! We have to hold her down, so that she doesn't hurt herself.  Well, last week was a breaking point for me...day care said she was horrible all week, she was an absolute wreck at home, and I lost it! I broke down.  I called for the Riley doc to personally call me back. And she did! (She's amazing)! I told her that I know somethings wrong w/ Judy, I KNOW IT! She told me that I didn't need to say anything else, that she would free up her afternoon the next day to see us. 

VALIUM

This leads us to just a couple of days ago.  I took Judy in to see the Riley doctor.  My dad went with me.  Once again, Riley was amazing!!! Spent over an hour with us.  Doctor ruled out many things, such as, allergies, autism, any major organ dysfunctions, etc.  The doctor then looked at me and said, "Mrs. Spear, in all my years of being a doctor, and after talking to plenty of colleagues, we have NEVER seen a 1 year old so irritable, crabby and discontent."  That's when I lost it!!! How could this be happening to me?!?! How could I be the mom of this baby!?! How in the world is she the only one that they can't figure out?!?! UGH!!!  The doc then felt bad, because she didn't mean to make me upset, she was jut trying to let me know that she hears me and is not dismissing this.  She's wonderful.  She then ordered more blood work.  This is because they wonder if she might have rheumetory arthritis.  Some of her levels have been elevated for inflammation.  However, this is simply just a hunch.  She does have communication delays, so she's starting speech with First Steps. BUT I know, this is not the whole problem! Last visit, they did say that she had anxiety, but they weren't sure this could be her whole problem.  Well this time, the doctor talked her case over with plenty of other doctors and decided to put her on Valium!!! Yes, VALIUM! I about died!!!!! They are only going to let her be on it for 3 weeks b/c after that, she will get addicted.  I'm like, you have got to be kidding me!!!! She's going to end up a drug addict!!!! What the hell?!  I do trust the doctor though, and I'm willing to try whatever she says.  Doc said this should completely relax her.  Doctor will be checking in weekly.  So, I got the script....

This will be the 3rd night that we will try it.  Past 2 nights, the Valium hasn't touched her! NOTHING has changed!! Can you believe this?!?!?! That strong of drug hasn't effected her tiny little body at all!!!!! We are in shock!!! We will try again tonight and then I will be calling the doc tomorrow.  Wondering if maybe she needs to be on a higher dose?!?!  Really sad though, b/c the Valium makes her face look weird.  You can tell she's drugged up.  Michael and I have just been sick about this!!!  And we just know, something has to be hurting her, for her to continue to cry with all these drugs in her! :( 

 

Never Ending Story...

So, the story goes...I will try to update weekly, if not more.  If you are a mom OR dad and have a crying baby that won't stop, you are not alone!!!! I'm hoping to reach some of you, that are at the end of your ropes and feel hopeless!!! We are right here w/ you!!!  Please pray for the doctors and Baby Judy, that we will find answers!!!! I just need answers!!!!!